County Durham

Welcome to the County Durham Neurodevelopmental Needs Led Support website

Hello!  This website is a guide for families in County Durham with children and young people who may have needs associated with neurodiversity.  Parents and carers have told us which information they think would be most useful to share, so please use the toggles to open and close the sections below that you're interested in.

Click here to navigate to:

Information for Professionals, Clinicians, and System Delivery Partners in County Durham

Information for Parents, Carers, and Adults of Children and Young People in County Durham (this section coming soon)

Please go to the County Durham Neurodevelopmental Diagnostic Assessment Service section below to read about the changes made in November 2025 to the referral form and referral process. Click here to download the new referral form.  If you are a Professional you can also click here for more information. 

For children aged under 5 the referral process is different.  If you have any concerns about your child's development the first step to take is to speak to your Health Visitor.  In County Durham, the telephone number for the 0-25 Growing Healthy Service (Health Visiting) is 03000 263 538. 

Christmas with autism and other additional needs: How families cope with sensory overload at Christmas

With bright lights, crowds, unfamiliar noises, routine changes, and over-excited family members, Christmas can be an overwhelming experience for children and adults with sensory sensitivities. But there are ways you can steer through the disruption and keep the Christmas magic alive.

This CBeebies Parenting article has a Santa’s sleighful of useful tips from both parents and experts to help you manage the overload. Click here to read: https://www.bbc.co.uk/tiny-happy-people/articles/zw8pg2p 

If you’re not registered with a GP practice, you can use the NHS website to find the one nearest to you and information on how to register.

To understand your legal Right To Choose please click here.

In County Durham, the Neurodevelopmental Diagnostic Assessment Service for children and young people aged between 5 - 17 years old is provided by Tees Esk and Wear Valleys NHS Foundation Trust. 

Referral forms will only be accepted from a Professional who has worked with the child or young person and their family to complete the form together. Please note that the referral form and process were updated on 3rd November 2025.  Click here to download the referral form.  

If you are a Professional please click here for more information. 

In County Durham, the Neurodevelopmental Diagnostic Assessment Service for children and young people aged between 5 - 17 years old is provided by Tees Esk and Wear Valleys NHS Foundation Trust. 

The service offers diagnostic assessments for Autism, ADHD, and combined assessments for both Autism and ADHD. 

The service does not currently offer diagnostic assessments for any other neurodevelopmental condition.

What’s Changed?

All new referrals for neurodevelopmental diagnostic assessment (ADHD, Autism, or combined ADHD and Autism diagnostic assessment) must follow a needs-led approach:

·       Before making a referral, families must meet with a Professional who knows the child well—this could be from Education, Health or Social Care.

·        A school teacher, nursery teacher, a member of the Health Visiting team or the social worker supporting the family are all examples of Professionals who may know the child well.

·        If your child is not in education, please speak with a professional involved in your child’s care currently or that has been in previous years, to support you with your referral or email the Neurodevelopmental Assessment Team for advice

tewv.northdurhamneuro@nhs.net

·        Together, the family and the Professional will complete the Needs Led Planning Tool. This helps identify the child’s needs and explores support options. This may include supporting children and their families to access services without requiring them to have a clinical diagnosis.

·        If it is agreed that a neurodevelopmental diagnostic assessment is appropriate, the referral form must be completed by the Professional and submitted.  

Key Changes to the New Referral Form and Process

There is now a checklist on the front page of the referral form to guide the Professional and the family through the needs led approach. Each of the steps must be completed before the referral form can be submitted.

The Professional must use the Needs Led Planning Tool. It should be completed collaboratively by Professionals with families.

The Needs Led Planning Tool isn't available to download from this website.  Professionals should already have this tool, however if any Professional does not, they should contact tewv.northdurhamneuro@nhs.net using their work email address to request a copy.  This Needs Led Planning Tool will be uploaded onto the Family Hub Platform in November 2025.

Why are these changes being made?

All system delivery partners within the County Durham Care Partnership are committed to ensuring that services are accessed by the right people at the right time — and that families receive support based on need.

The Neurodevelopmental Assessment Team have worked in partnership to develop and introduce a new referral process for children and young people aged 5 to 17 years old across County Durham.

This information was provided by the Service Manager of the County Durham and Darlington Neurodevelopmental Diagnostic Assessment Service, Tees Esk and Wear Valleys NHS Foundation Trust

CAMHS Durham and Darlington Neurodevelopmental Assessment Service is a community mental health service for children and young people in County Durham and Darlington, offering specialist screening and assessments in relation to social communication and attention difficulties.

The Durham and Darlington Diagnostic Assessment Service is delivered by Tees Esk and Wear Valleys NHS Foundation Trust (TEWV).  For information see the CAMHS Durham and Darlington Neurodevelopmental Assessment Service website.

You are not alone — there is support for you and your child in County Durham.

What is a need?  We use the word "need" to describe something that children and young people are struggling with or would benefit from some help with.

Here are some examples of needs that a lot of children and young people may have:

  • Trouble falling asleep at night, or staying asleep throughout the night.
  • Feeling restless or feeling like they must always be doing something.
  • Really doesn't like it when something unexpected happens to change their routine.
  • Feeling unsure how to act when with other people, either their own age or adults.
  • Likes only certain things, but the "like" seems to others as really intense.
  • Feels all their emotions as big emotions and they don't understand why or how to handle them.
  • Has trouble with remembering information or finds it hard to concentrate but can't explain why.
  • Feels overwhelmed in loud, new or busy places – or the opposite.
  • Isn't quite where they should be with their speech or language development.

Every child is different. Sometimes, children’s behaviour or feelings come from:

  • Trauma (something scary or upsetting they’ve been through)
  • How their brain works (like autism or ADHD)
  • Parenting needs (family routines, stress, or rules at home)

It’s important to know where their needs come from, so we can help them in the best way.

Trauma Needs - What is trauma?

Trauma is when a child has been through something very upsetting or scary, like:

  • Losing someone they love
  • Seeing or hearing violence
  • Being hurt or not cared for
  • Living in a home where adults are sad or stressed

Neurodevelopmental Needs - What are they?

These are differences in how a child’s brain grows and works. This includes:

  • Autism — differences with social play, communication, and sensory needs
  • ADHD — differences with attention, energy, and controlling actions

Parenting Needs - What does this mean?

Sometimes, a child’s needs come from things happening at home, like:

  • No clear routines
  • Not enough play or talk time
  • Stress at home (money, work, family problems)
  • Not knowing how to handle behaviour

First of all, it’s really important to know that these behaviours or needs don’t mean a child is being “naughty” or doing something wrong. Sometimes, children and young people feel or act in certain ways because they don’t understand what’s going on inside them, or they don’t know how to ask for help.

Also, just because a child shows these behaviours, it doesn’t always mean they need a diagnostic assessment for ADHD or Autism.

What matters most is making sure the child or young person gets the help they need. Families can get support whether there is a diagnosis or not.

You are not alone — there is support for you and your child in County Durham.  Use the sections below to learn about the available support and how to access it.

Below are the top three actions that families can take to start their journey:

  1. Talking to professionals helps you understand the support that is right for your family (professionals such as your Health Visitor, or the SENDCO* at school).
  2. Attending training for families helps you to understand your child or young person's needs and what you can do to support them.
  3. Talking to other families can help more than you may think, and lets you know you're not alone.

We know some of these challenges are not easily resolved.  Families can learn strategies to support their child or young person, but this takes time, patience, and effort. 

Having the needs of the child or young person met is our priority and this often takes time and a lot of effort from their families, carers, and all the professionals supporting them.

 

* Every school has a SENDCO (Special Educational Needs and/or Disabilities Coordinator) who is a member of staff that has had extra training in special educational needs and/or disabilities.  Any parent can ask to meet with their school's SENDCO to talk about their child/the child they care for.

The BBC Bitesize website has this short video explaining what a SENDCO does, and how they can support you and your child.

Durham County Council

County Durham Family Hubs Our Family Hubs support families from pregnancy right up until your child turns 19, or 25 if they have special educational needs and disabilities. There are 15 Family Hubs around County Durham, a lot of support for parents and families are available in most of the Hubs and/or online.  All of the activities, groups or support available through the County Durham Family Hubs is free.

Click here to see all County Durham courses and groups for families of children with special educational needs and/or disabilities (SEND) including children and young people with FASD.  

The County Durham Family Hubs Facebook page  is updated every day with useful information, activities and events taking place across all 15 Family Hubs including Needs Led Support updates.

Waves is here to support County Durham and Darlington parents and carers who care for a child or young person (0-25yrs) with emotional or mental health difficulties. 

Led by a friendly parent peer practitioner and supported by a Child and Adolescent Mental Health Service (CAMHS) staff member, the group will listen, support and offer advice and guidance based on their own lived experiences.

  • 18 March, 10am - 12noon, SENDIASS, Lee House, Lee Terrace Easington Village, Peterlee, SR8 3AB
  • 19 March, 6pm - 8pm, Acley Centre, Carers Way, Newton Aycliffe, DL5 4PE
  • 1 April, 10am - 12noon, Mulberry Centre, Rowan Building, Darlington Memorial Hospital, DL3 6HX
  • 2 April, 10am - 12noon, Lanchester Road Hospital, Durham, DH1 5RD
  • 15 April, 10am - 12noon, SENDIASS, Lee House, Lee Terrace Easington Village, Peterlee, SR8 3AB
  • 16 April, 6pm - 8pm, Acley Centre, Carers Way, Newton Aycliffe, DL5 4PE
So, grab a cuppa, a snack and have a chat, a warm welcome awaits you.  There’s no need to book. If you have any questions, please email the team at tewv.waves@nhs.net.  Keep up to date with new dates on our NHS TEWV Facebook page.


Other opportunities to speak with professionals or families with experience:

  • Durham SEND Information Advice and Support Service (SENDIASS) drop-in sessions.
  • The Educational Psychology team offer drop-in sessions for parents and carers to have one-to-one conversations.
  • The FASD Network offer support groups for families who are raising children with Fetal Alcohol Spectrum Disorder (FASD) on a termly basis.  They also admin a closed Facebook group called FASD UK which provides daily peer to peer input for families which in turn breaks isolation and offers timely solutions to daily needs.  If you are raising a child with FASD in the North East and Yorkshire then please click on this link to register with us so we can add you to the mailing list. REGISTRATION
  • Daisy Chain can offer strategies and approaches that are compatible with: Autism, ADHD, FASD, Sensory processing differences, anxiety and social and communication differences.  Come along to a drop-in coffee morning or workshop (available in person or online).  Daisy Chain also offer a Telephone Advice Help Line 0800 031 5445.
  • The County Durham Health Visiting Team offer Growing Healthy Drop-In Sessions for parents/carers of children who are up to six years old, and offer advice around feeding, sleep, toileting and much more.
  • The North East Autism Society run a Family Networking Facebook Group and offer one-to-one sessions for families to discuss any issues in confidence.  To book a place please contact Rebecca Weatherstone on 0191 410 9974 or email rebecca.weatherstone@ne-as.org.uk
  • Durham County Carers Support Groups offer carers a place to go for a chat with tea and biscuits with people who people who really understand the challenges involved in being a carer. 
  • Little SENDsations is a parent-led charity providing a range of support to families of children with all disabilities. The organisation has produced Durham's Guide To SEND Support By Parent Carers For Parent Carers.
  • Little Treasures are a volunteer run charity who support autistic adults and children across the North East.
  • Hart Gables  is a support service for those who identify as LGBTQ+ across Teesside and East Durham. There are a number of in-person and online support groups for parents/carers of LGBTQ+ young people. 
  • Young Minds Parents Helpline 0808 802 5544 for parents and carers who are concerned about their child or young person's mental health.
  • National Autistic Society Autism Diagnosis Advice Hub - link to website.

Durham SEND Information Advice and Support Service (SENDIASS) are running regular free drop-in sessions across the county offering support, help and advice for families of neurodiverse children, or who needs associated with neurodiversity. 

Families don’t need a diagnosis to attend — just come along and chat with professionals, charities, and local groups. It’s a great chance to meet other families and get information on health, wellbeing, education, care, and more.

Find your nearest session: www.durhamsendiass.info/dropinsessions

Free Parent/Carer Training, Self-Help Support and Workshops for Understanding Neurodiversity and Supporting Your Children in County Durham

Durham County Council offer lots of free courses and groups for families of children who may have needs associated with neurodiversity. Click here to see what is available.

Stepping Stones is for parents of children who have needs associated with neurodiversity, up to the age of 12.  If you are struggling with your child's behaviour or if you would like to learn parenting skills to help promote their development potential this course is for you. Click here for more information.

County Durham's Local Offer website.  Click here for more information.

Free online Solihull courses, available to parents, carers and grandparents of children who have needs which may be associated with neurodiversity, living in County Durham. Click here for more information.

Tees Esk & Wear Valleys NHS Foundation Trust offer a range of free courses for parents/carers of children and young people aged 0 to 25 years of age in County Durham who have needs which may be associated with neurodiversity. Click here for more information.

County Durham's official Parent Carer Forum, MCT PCF, have a list of upcoming training and workshops on their website.  Click here for more information.

As part of the Autism Central programme, Daisy Chain provides a range of online learning opportunities covering a variety of topics to help support individuals and families. These online sessions are free and open to families living in North East and Yorkshire. Click here for more information.

Autism Central also offers opportunities to talk to people who share similar experiences through group workshops, drop-in sessions, coffee mornings or virtual meetings. Click here for more information.

38 minute Fetal Alcohol Spectrum Disorder Boost Introduction Session:

Resources and information: Boost website

 

MCT PCF Logo and links

 

 

 

 

 

 

Making Changes Together Parent Carer Forum, now known as MCT Durham PCF, are Durham’s official Parent Carer Forum.  They are an experienced group of parent carers volunteers who work with families and professionals to influence and improve services to children and young people (0-25 years) with special educational needs and disabilities within the Durham local authority area.

Click here to read the report from their County Durham Parent Carer Conference on 14th May 2025.

Their website is full of useful local information and links to resources to support children, young people with special educational needs and disabilities and their families.

The website also includes an excellent jargon buster.

Get in touch with MCT:  For quick answers please message via the Facebook page

Email: info@mctdurham.co.uk

Children and Young People's Participation and Engagement

Investing in Children run a wide variety of groups and projects for children and young people, some are listed below but visit their website for more:

The Art Café is a drop in session open to anyone and everyone aged up to 18 years, looking for a place to be included and meet new people.

Every Monday, 4:30pm – 6:30pm at The Sjovoll Centre, Front Street, Framwellgate Moor, Durham DH1 5BL

The eXtreme Group are a group of young people in County Durham with SEND. We meet to share ideas and help to make SEND services better for young people. eXtreme members attend events on behalf of Investing in Children, organise events and work with Durham County Council and the NHS!

The group meets monthly at The Sjovoll Centre, Front Street, Framwellgate Moor, Durham DH1 5BL

Please contact the Project Team on 0191 307 7030 or info@investinginchildren.net for the upcoming dates.

Children in Care Council (CICC) are a group of children and young people who are looked after by Durham County Council.  We are a group of children and young people who are looked after in County Durham.

The Durham County Council promise is set in place to ensure that young people in care or that are entering care receive the correct level of support.  To view the Durham County Council list of promises, please click here to view the 'Our Promises to You' leaflet.

We meet every month to talk about life in care and raise any issues we have and the improvements we want to make to Durham County Council. CiCC is also an opportunity for children and young people to come together and say what works and share positive stories of the support we have received. Click here to visit the CiCC website.

Please contact the Project Team on 0191 307 7030 or info@investinginchildren.net for the upcoming meeting dates.

What is neurodiversity and neurodevelopmental needs?

Neurodevelopmental needs are differences in how a person’s brain grows and works. These differences affect how a person learns, behaves, and feels.

Some common neurodevelopmental conditions are:

  • Autism — affects social play, talking, and sensory experiences (like sound, light, or touch)
  • ADHD (Attention Deficit Hyperactivity Disorder) — differences with attention, energy, and controlling actions
  • FASD (Fetal Alcohol Spectrum Disorder) — affects brain development. Caused by alcohol exposure before birth/whilst the baby is in the womb
  • PAE (Prenatal Alcohol Exposure) — effects from alcohol the baby was exposed to while in the womb
  • Learning disabilities — difficulties with understanding, remembering, or using information

Signs to look for:

  • Finding change or new things very hard
  • Getting upset by loud sounds, bright lights, or busy places
  • Strong focus on certain interests or topics
  • Trouble understanding social rules, feelings, or other people
  • Lots of energy or acting without thinking
  • Difficulties with memory, attention, or learning new things
  • Trouble with managing emotions or behaviour

Neurodevelopmental conditions are lifelong.  As a teen or young adult, people might face more challenges with school or work, making friends, or managing emotions. It’s important for children and young people to be supported as early as possible for a smoother transition into adulthood and parenting strategies may need to change.

Below are a few websites with neurodiversity information that we trust:

NHS - The search function on the NHS website can be used to find out about individual conditions.  It also has information on How to care for children with complex needs and Looking after a child or young person's mental health (NHS).

Fetal Alcohol Spectrum Disorder (FASD) The FASD Network is an organisation that specialises in providing information, support and training on FASD.

The National Organisation for Fetal Alcohol Spectrum Disorder (FASD) also provides advice and information for parents and carers.

The ADHD Foundation Neurodiversity Charity website has lots of  Neurodevelopmental Resources and Information for Families

The Brain Charity provides advice, support, legal advice, activities across the Country.

The Witherslack Group have produced a series of information videos, podcasts, and live webinar events which are available on their website.  This video explores the characteristics of ADHD and Autism, the common challenges and factors that contribute to dysregulated behaviour.

ADDitude Magazine website has articles on ADHD Myths and Facts and Facts about ADHD 

The Understood website allows you to experience the world Through your SEND child’s eyes - What does it feel like to learn and think differently? Watch these videos to see the world through your child’s eyes.

How to ADHD is an award winning YouTube Channel offering tips, tricks and insights into the ADHD brain.

The charity ADHD Adult UK website's has this guide along with other information How to explain ADHD

The National Autistic Society website has an area dedicated to supporting families Autism Online Resources and Information 

What's Up With Nick and Fast Facts About Autism For Kids are YouTube videos created for children and young people who are not neurodiverse, to help them understand autism.

The Royal Mencap Society's website provides information on Global Development Delay 

ADHD UK 's website is full of information including an up to date of all approved NHS Right To Choose ADHD and Autism diagnostic assessment providers along with waiting list times.

Cerebra is a UK charity offering support to families where a child has a brain condition.  Their website offers sleep advice, parent factsheets and LEaP the Legal Rights Service. 

A child or young person has special educational needs and disabilities if they have a learning difficulty and/or a disability that means they need special health and education support, we shorten this to SEND.

 

How should your Local Authority Help?  The Local Authority in County Durham is Durham County Council. All Local Authorities need to identify and assess the special educational needs (SEN) of children and young people in their area when they become aware that they have or may have SEN.   

Under the Children and Families Act 2014, your LA must always think about how your child, or you if you are a young person, can be supported to facilitate development and to help your child or you achieve the “best possible educational and other outcomes”. Visit the IPSEA website for more information.

 

In County Durham, the Local Offer website helps families to find the very best support for their child or young person (from birth to 25 years) with special educational needs and disabilities (SEND) including children and young people with FASD.  Families can access resources and activities which are aimed at supporting children and young people with special educational needs (SEN), and information for parents/carers and professionals on The Local Offer website.

 

The Durham SEND Information Advice and Support Service (SENDIASS) is a free, confidential, impartial support and advice for parents, carers, children and young people up to the age of 25 years in relation to special educational needs and disability. SENDIASS operates at 'arm's length' from the council.  Your child does not need to have a diagnosis to access any help, support, or advice from the SENDIASS team.

 

 

Please access the SENDIASS website for information and resources.  For updates and events please follow the SENDIASS Facebook page.

Please use ‘one’ of the following methods to contact the service

  • Telephone: 0191 587 3541 or 03000 267 007 - If you are unable to get through, please leave a voicemail
  • Email: sendiass@durham.gov.uk
  • Online: You can contact us by completing our contact form.
  • Due to increased demand on the service please allow 3-5 working days for a response. During this time please do not make further contact with the service as we will respond to your initial enquiry.

County Durham Families Information Service SEND Local Offer website provides links to services and support across County Durham.

 

Durham SEND and Inclusion App Resource - Do you have an iPad or tablet device? Do you use it with a child or young person with Special Educational Needs and Disabilities (SEND)? Don't know which apps would be useful?  You need the Durham SEND and Inclusion App Resource

This resource has been created by the SEND and Inclusion Service in Durham and contains a range of apps which may be beneficial for children and young people with SEND. This resource will be updated every two years. It was last updated in March 2024.

 

Independent Provider of Special Education Advice (IPSEA) are the leading charity in the field of SEND law in England.  We help children and young people with special educational needs and disabilities (SEND) get the education they are entitled to by law because children and young people with SEND are legally entitled to an education that meets their individual needs.

 

MCT (Making Changes Together in County Durham Parent Carer Forum) have compiled a list of useful links on their website and a parent leaflet which they co-produced with Durham County Council.

 

Locate is an online directory allowing residents to connect with local services in their community.

 

 

Children and Young People's Network (CYPN) Durham County Council must keep a register of children & young people with special educational needs and / or disabilities and in Durham this is the CYPN.

Register your child / young person (0 - 25 years) to receive email or text alerts covering the latest news & developments, short break activities, events and general information, a local discount card and whilst stocks last a Max card which gives family discounts at large number of UK attractions. Visit their website for more information or telephone: 03000 265 792  or email: cypn@durham.gov.uk

 

The BBC Bitesize website provides activities, advice and personal stories about parenting and special educational needs and disabilities to help you support your family.

Our advice for families considering purchasing "melatonin gummies" from the internet to give to their children:

Melatonin is available without a prescription in some countries but in the UK it is a prescription-only medicine.  It may be available online from some authorised suppliers but these websites will not always be registered as pharmacies in the UK and therefore the melatonin may be fake or unsafe to use.  Melatonin should only be used when prescribed by a doctor and under medical supervision.

Click here for more information from the NHS website.

 

Family Hubs Sleep Action Workshops - For parents and carers of children from 18 months to 19 years old, our Sleep Action Workshops give you information and techniques to help you support your child to get a great night's sleep.  Click here for more information and to book onto a workshop.

 

Understanding sleep - online training (Tees Esk and Wear Valleys NHS Foundation Trust) Our child and adolescent mental health services (CAMHS) service in County Durham and Darlington offers free online training for parents and carers of children and young people. To book email tewv.countydurhamcamhstraining@nhs.net

 

County Durham 0-25 Family Health Service - Families can access lots of support and advice from the County Durham 0-25 Family Health Service through their app.  Download from your usual app store to a smart phone or tablet for free, create an account and then scroll to bottom of the home page to access "Sleep Support".

The Growing Healthy SEND Team provide in person workshops for parents and carers to support the health and development of children with Special Educational Needs and/or Disabilities (SEND).  Click here to see dates, times and booking information for upcoming sessions.

You may also find this trusted information about sleep for children of different ages helpful:

County Durham Family Hubs offer:

 

Special educational needs and disabilities (SEND) and our Local Offer - There are a variety of specialist services and teams who provide support and advice for children with special educational needs (SEN).  Full information on support services is now available in one place on our website.

 

Child and Adolescent Mental Health Services in County Durham - Please visit the Child and Adolescent Mental Health Services (CAMHS) web pages for information on the support they offer in County Durham.  

The service also offers free online training for parents and carers. For information and upcoming sessions dates visit CAMHS Training and Information Sessions for Parents/Carers

To speak to a member of the CAMHS team telephone 03001 239 296 or email tewv.camhscountydurhamdarlington@nhs.net

Health Exercise and Nutrition in the Really Young (HENRY) - HENRY courses are available in our County Durham Family Hubs throughout the year, delivered by the Growing Healthy Service.  Courses are free and include:

Click the above links for more information and to book your place or speak to your Health Visitor.  For more information about the HENRY organisation visit their website.

 

The Growing Healthy SEND Team provide support for families of children with special educational needs and/or disabilities (SEND). The team is made up of trained and experienced school nurses and family health practitioners who can offer advice and support around your child's health and development.

As part of this support the team are running workshops on topics that are often raised by parents and carers of children with SEND - Courses to support the health and development of children with Special Educational Needs and/or Disabilities (SEND) including:

  • Sleeping well with SEND: strategies and support
  • Empowering Families: SEND children and continence challenges
  • Sensory challenges and fussy eating: strategies for SEND children

Courses are for: Dads, mams, and carers of children or young people aged two to ten years old with special educational needs and/or disabilities (SEND). Further information and how to book, visit the website or email: hdft.0-25senddurham@nhs.net

 

Avoidant/Restrictive Food Intake Disorder (ARFID):

As part of the Autism Central programme, Daisy Chain provides a range of online learning opportunities covering a variety of topics to help support individuals and families, including ARFID.  These online sessions are free and open to families living in the North East and Yorkshire. 

 

Witherslack Group - SENsational Podcast - Understanding and Exploring ARFID.  Are you a parent of a child experiencing extreme food aversion? Nicole Kirkland & Emma Taylor from ARFID Awareness join us on the sofa for a discussion exploring Avoidant/Restrictive Food Intake Disorder (ARFID). Learn practical insights on what ARFID is, how it can co-occur with other neurodevelopmental differences, plus expert tips to support those affected.

 

Endeavour is an online peer support group for parents and carers of children and young people aged 5-15, with an ARFID (Avoidance/Restrictive Food Intake Disorder) diagnosis and/or displaying ARFID behaviours and presentations.  Download Beat's PDF about Endeavour here.

 

Autistica work with leading experts from around the UK to stream free live webinars to you in the comfort of your own home. Click here to watch Discussing eating patterns, experiences of eating disorders, and Avoidant Restrictive Food Intake Disorder (ARFID).  Click here to see all other webinars.

 

Recovery College Online - Information for service users, carers, staff and anyone interested in mental health about eating disorders, such as what an eating disorder is, how to support someone, and information about young people experiencing eating disorders.

As a parent, you know your child best and spend the most time with them. You are key in supporting their speech, language and communication.  For information and support visit the County Durham Family Hubs webpage Getting your child ready for school by supporting with their speech and language.

 

Your Health Visitor has a wealth of knowledge and experience about speech language and communication development to share.  In County Durham, the telephone number for the Health Visiting service is 03000 263 538.  

Other Useful Websites: Language and communication skills unlock literacy. To learn more about the building blocks of language development and even more ideas to help your child get ready for school, please visit:

 

Durham County Council's Local Offer provides local information and things to do. 

Short Breaks and Respite Care - Being a parent carer of a child or young person with special educational needs and or disabilities (SEND) we know can be difficult, and you may need some time to help you cope with family life. Short breaks are designed to help you have a break from your caring responsibilities.

 

Fun and Food - County Durham's Fun and Food programme runs during the Easter, Summer and Christmas school holidays across the county.  All sessions are free and include breakfast/lunch/tea and snack.

Keep up to date with the Fun and Food Facebook group.

 

Children's Occupational Therapy Service at County Durham and Darlington NHS Foundation Trust supports children and young people from birth up to 18 years of age who have difficulties or a disability which affects their ability to carry out everyday tasks.  Their website is full of information that you may find useful including this guide intended for use by parents and carers, education staff and other practitioners supporting children or young people living in County Durham.

 

The Children's Physiotherapy Service team at County Durham and Darlington NHS Foundation Trust have created videos and resources to help you and your child with exercise. For more information about the NHS service in County Durham please visit the website.

 

County Durham Care Academy - Click Here for information and how to book onto free County Durham Care Academy courses for unpaid family carers from Durham County Carers.

 

Visit the Durham County Council leisure centres website to see the most up to date information on the activities on offer at each site. Also see the inclusive activities section. 

 

Sensory Worx have created this video "Sensory ideas for the home"

A recorded webinar has been developed by an Occupational Therapist to outline tips and guidance for supporting children and young people with sensory needs within the home.

 

 

Educational Psychology drop-in sessions for parents and carers

Educational psychologists help children and young people with a wide range of different needs, such as, learning, communication and language, social and emotional-wellbeing, practical skills or being independent.

Any parent who is concerned about their child can pop in to one of our drop-in sessions, where one of our friendly team can offer advice, talk through your concerns and help you plan what to do next.

We can help if, for example:

  • You are worried your child isn't talking enough.
  • You struggle to know what is best to do when your child has a 'tantrum'.
  • You've noticed your child doesn't play with other children much.
  • Your child is always on the go and doesn't sit still for any activity.
  • Your child really struggles to be apart from you.

To find out when and where our drop-in sessions are taking place visit the website or telephone Family Hubs 03000 261 111.

 

Durham SEND Information Advice and Support Service (SENDIASS) is a statutory service supporting parents/carers of children with special educational needs and disabilities (SEND) and children and young people with SEND.

We aim to empower parents/carers, children, and young people to play an active and informed role in making decisions about education, health, and social care.

Our role as an Information Advice and Support Service (IASS) is to help parents/carers, children and young people build their knowledge, and confidence in SEND law, procedures, policies, and practices, and to enable them to communicate with their own needs, wishes, and rights.

Durham SENDIASS is a free, impartial, and confidential service that operates at ‘arm’s length’ from the Local Authority (Durham County Council)

 

 

Portage is an early learning support service provided by Durham County Council for pre-school children who have complex developmental needs and their families.

Pre-school group for children with complex needs is for families of children aged 2 to 3 years, who are experiencing challenges interacting and communicating with others.

The group provides opportunities for children to develop early communication and social interaction skills through sensory and fun play experiences. It also allows parents and carers to meet other families in a supportive group.

To access the group download, complete and return the form on this website or telephone 03000 263 350 to complete the form over the phone.

Elective Home Education is where parents provide education for children at home or in some other way instead of sending them to school.  

For more information visit the Durham County Council schools section of the website.

 

Durham County Council Empowering Inclusive Communities (Supported Activities for Children and Young People with SEND)

Our vision is for all children, including those with special educational needs and disabilities (SEND), to be active, engaged, and thriving members of their local communities. We’re committed to ensuring they, along with their families, receive the right support to make this a reality.

You don't need a social care assessment. Take a look at our Facebook page which is updated daily, or you can contact us by telephone 03000 260 270, or email SENDEIC@durham.gov.uk. Click here to visit our website.

Eric Knows – is a comprehensive index of things to do in the North East Of England.  Making looking for stuff to do, experiences, taste and drink easy to find.

 

Max Card - Discount Card

We provide Max Cards to Durham Local Authority upon request, but are not in a position to comment in relation to the Councils issuing of these cards. You can contact the team on 03000 265 792 for some more information on the Max Card.

Available discounts can be viewed online here.

 

Durham County Carers Support Discount Card

The scheme offers carers discounts and concessions at retail and leisure venues throughout County Durham and Darlington.

For more information email admin@dccarers.org Telephone 0300 005 1213 Text: 07624 818403

 

Nimbus Disability Access Card

Get your access requirements recognised at thousands of events, attractions, venues, and locations across the UK and beyond.  The physical card acts as a photo ID that can be used to easily communicate your access requirements to events and venues, so that the venues can provide accessibility to the needs of their visitors.

County Durham NHS Talking Therapies Service

Talking Therapies is a FREE self-help, counselling and talking therapies service designed to help anyone living in the County Durham and Darlington area to deal with common mental health problems such as stress, anxiety or depression, as well as panic phobias obsessive-compulsive disorder (OCD) and post-traumatic stress disorder.

Telephone 0191 333 3300 between 9am – 5pm Monday to Friday or visit the website by clicking here.

 

Short Breaks Respite Care (SEND Empowering Inclusive Communities)

Short breaks are designed to help you have a break from your caring responsibilities.  SENDEIC will work with you if you need a break from caring but are struggling to find a suitable activity for your child (including children and young people with FASD). 

We will work together to help remove barriers, fill any gaps in provision and enable access wherever possible. 

Our vision is for all children, including those with special educational needs and disabilities (SEND), to be active, engaged, and thriving members of their local communities. We’re committed to ensuring they, along with their families, receive the right support to make this a reality.

Contact us by telephoning 03000 260 270 or by emailing SENDEIC@durham.gov.uk or visit our Facebook page.

Parent and Carer Support Group in County Durham and Darlington

If you care for a child or young person (0-25yrs) with emotional or mental health difficulties, why not come along to one of our friendly support groups.

All groups are led by a friendly parent peer practitioner and supported by a CAMHS mental health nurse. The group will listen, support and offer advice and guidance based on lived experiences. There’s no need to book. Download more information here. If you have any questions, email the team at TEWV.waves@nhs.net 

Mindfulness sessions

We offer mindfulness sessions for people who experience repeated episodes of depression or who parent or care for someone with mental ill health or a learning disability.  Mindfulness is a particular way of paying attention to the present moment and can help us become more aware of our thoughts and emotions.

Tel: 01325 552017

Email: tewv.mindfulness@nhs.net

Join our Recovery College

Our ARCH Recovery College in Durham has a range of sessions to people with experience of mental illness, including patients, their family, friends and staff.

 

Rainbow Guide - Durham County Council have created this handy guide for children and young people's emotional wellbeing support, which you can also download and print.

 

Durham Young Dads Project

Durham Young Dads Project is run by the North East Young Dads and Lads and provides free one-to-one and/or group support to young dads and dads-to-be (aged 25 and under) in County Durham. 

They support young dads to grow, as well as helping them to develop their parenting skills. This could be support to deal with challenges young dads are facing now, as well as helping them to develop the knowledge and skills they need to make positive changes to improve the wellbeing of young dads and their families. This is done through mentorship, educational resources and community engagement, to create an environment where young dads can thrive.

Support is available to young dads who are neurodiverse and/or who have children with neurodevelopmental needs. The project also supports young dads who are looked after by Durham County Council.

Website: Durham young dads project

Text or telephone 07990 164 449

Email info@neydl.uk 

 

Kooth

Kooth is an online mental health service for all children and young people from 11 year to 18 years. Kooth offers a counselling and emotional well-being platform, accessible through mobile phones, tablets and desktop computers and are free at the point of use. It gives children and young people easy access to an online community of peers and a team of experienced counsellors. Access is free of the typical barriers to support: no waiting lists, no thresholds, no costs, and complete anonymity.

Kooth is anonymous and free to use. Young people can register on Kooth without having to provide personal details such as their name or address. It provides a safe and non-judgmental place for them to talk, connect and chat with others and know they are not alone.  More information can be found on the Kooth website.

 

Durham County Carers Support

Durham County Carers Support and Darlington Carers Support offer a variety of different services to local carers. We can work with you to help you find the information you need to care for someone and can inform you about other services to help you look after yourself. 

Opening Hours: 9am-5pm Monday-Friday (excluding Bank Holidays)

Address: Durham County Carers Support Enterprise House, Enterprise City Meadowfield Avenue Spennymoor Co Durham DL16 6JF

Telephone: 0300 005 1213 : Text service: 07860017632

Email: admin@dccarers.org

Click here to access the Durham Carers InfoPoint

Click here for information on Durham County Council's Local Offer Special Educational Needs and Disabilities: Feedback, Concerns and Complaints 

 

Independent Provider of Special Education Advice (IPSEA) are the leading charity in the field of SEND law in England.  They help children and young people with special educational needs and disabilities (SEND) get the education they are entitled to by law.

IPSEA offer Free Legal Advice for SEND Law in England. Click here for information on SEN and disability law.

 

Cerebra - Legal Rights Service and Problem Solving Project

Public bodies in the UK have certain duties to provide health, social care and other services for disabled children. Our Legal Entitlements and Problem-Solving (LEaP) Project helps you get the right legal support for your child if you are having difficulty accessing the right services. Requests for help must satisfy our eligibility criteria – you can find out more in our project guidelines here.

 

The Brain Charity – Legal Advice

Unfortunately, people with neurological conditions are more likely to face life-limiting disabilities, often as a result of sudden injuries.  You and your family may need professional legal advice, support navigating legal pathways or assistance advocating for yourself in legal situations.

Your child does not need a perfect parent/carer.

They need a safe, loving, patient one.

And that is already who you are.

Even on the days you feel you have nothing left…

You still show up.

That is strength.

That is love.

That is enough.

You are the reason things will change.

You are not just an advocate.

You are a lifeline.

You are brave.

You are powerful.

You are not alone.

And you are doing an incredible job.

Thank you for being exactly who your child needs.