How we are working with the public
- Find the key topics and areas we need public feedback on
- Work with public members who advise and guide our work
- Share and learn from other regions
- Work with the national team using our insights and knowledge
- Decide whether projects looking to access the Secure Data Environment are in the public interest
- Take part in meetings where key programme decisions are made
- Have produced all of our patient leaflets and posters
Meet Chris and Susan.
Our research
We have carried out an impact assessment on people who have already opted out of data sharing which provided useful insights into which groups of people are most likely to opt out.
We have carried out two street surveys which collected the views of over 1500 people living in the North East and North Cumbria.
We continue to research and gather views from people across the region, from different communities to understand how they feel about their health and care records being used for research and planning. We are currently recruiting for focus groups which will take place in March and April 2025.
Where can I find out more?
Understanding Patient Data has a range of resources and materials which explain how health and care information is used in different ways.
